(Don Wright in his own words...)
(CNN) -- I feel incredibly lucky to have the health and the
years needed to run a marathon in each of the 50 states.
When I was first diagnosed with multiple myeloma nine years
ago, only half of newly diagnosed patients survived more than five years. Since
then, I've run 70 marathons, the most recent in Hawaii, my 50th state.
Hot, exhausted, sore, bent a little to the right, and
walking a lot, I finally trotted across that finish line in Honolulu. I'm sure
I had a big grin on my face because it was the end of a long quest, the
completion of which was never a certainty.
There are more people who climb Mount Everest each year than
there are runners who finish 50 states of marathons.
I remember laughing a little, feeling a mixture of joy and
relief, as I limped to the table where I could pick up my finisher's shirt and
medal. I didn't dare sit down at first, afraid that my muscles would cramp up
-- I had to keep walking for a few minutes at least. Everything was sore.
But muscles recover, and I was soon off to the other events
of the day: an interview, then to collect my wife and daughter (who also ran
the full marathon). We checked out of the hotel and hustled to catch a plane,
where I could finally relax. Sleep came easily, even on the plane.
Since then, the 50 States Marathon Club has accepted my
documentation, so I'm a certified "50 Stater." It's done and
official. Right now I'm savoring the temporary freedom from goals and running
just for the joy of it.
One big reason that I can run with myeloma is a drug called
pomalidomide. It's just a little red pill that I take every night. It doesn't
cure the cancer but has kept it at bay for almost five years, without the
severe side effects and clinic visits of regular chemotherapy. It's a miracle
drug for me.
When I started taking pomalidomide, it was an
investigational drug, not yet approved by the Food and Drug Administration. I
wish that life-saving experimental drugs such as it could be much more widely
available to people whose lives are threatened by illness.
Happily, pomalidomide has been approved by the FDA and will
be available to those who need it soon, marketed under the name Pomalyst. It
has the potential to do for thousands more what it has done for me.
We don't know what's next for us yet, but whatever it is
we'll continue to do it as a family. My wife and daughter have 48 states,
including their marathons and their half-marathons, so we'll certainly run in
their remaining states, Virginia and Massachusetts. And whatever we do, it will
be in support of worthy charities.
Live one day at a time and make it a masterpiece.
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