Her age fooled doctors big-time.
Gloria Borges, 28, seemed too young to have colon cancer.
From January to July, the hard-working attorney and had been plagued by
bloating and extreme diarrhea. Her general practitioner told her to take
probiotics and herbal supplements.
But by September she couldn't ignore the debilitating
symptoms.
She checked herself into a hospital in downtown Los Angeles,
where it took doctors five days to realize she needed emergency surgery for
stage-four colon cancer.
"Like anybody else who's 28 and experiencing [gastrointestinal]
issues, I just wrote it off as other issues," said Borges, who at the time
was told she would live just another year or two.
Now she's 31 and harnessing her youth, in an unusual
partnership with a top cancer researcher. The goal is to steer an ambitious
$250 million fundraising initiative to cure colon cancer, a disease that is
often hard to raise funds for because of an "ick" factor.
Colon cancer is on the rise among young people, with more
than 10 per 100,000 adults between the ages of 20 to 49 afflicted with the
disease in 2007, up from more than 8 per 100,000 in 1992, according to the
American Cancer Society.
People younger than 30 make up 2 to 3 percent of all
colon-cancer patients, said Borges, who has blogged about colon cancer for
three years and runs The WunderGlo Foundation, a public-education group that
raises funds for colon-cancer research.
Yet the diagnosis is difficult for younger adults because
colon-cancer screenings are only recommended for people older than 50, said
Jasmine Greenamyer, chief operating officer for the nonprofit group Colon
Cancer Alliance.
"If [the diagnosis is] under 50 ... it's often
misdiagnosed as anemia, hemorrhoids or, 'You just had a baby,'" she said.
"The only population increasing in incidence is under 50. It's a big call
to action."
The American Cancer Society says the reasons for the uptick
in younger adults' being diagnosed with colon cancer are "unknown"
but might reflect the nation's obesity epidemic, which has ballooned in recent
decades.
Younger diagnoses are changing the picture of the
colon-cancer patient. A photo of Borges on her anti-cancer initiative, The
Wunder Project (part of her foundation), shows her wearing a T-shirt that says,
"My oncologist is my homeboy."
She produced a viral "Harlem Shake" video in his
cancer center that grabbed almost a million hits.
Since her diagnosis and treatment, Borges, who is married
and lives in the Hollywood Hills of Los Angeles, has traded antitrust
litigating for fighting for cancer research. Her idea of a great party is one
that takes place in an intensive-care unit.
Music blasts from her hospital room after surgeries as
streams of friends and family members come in to laugh and enjoy themselves,
Borges said.
Borges' diet has also changed.
"I was a steak-and-cheese-platter and
Johnny-Walker-Black-drinking attorney," Borges said.
She's now a vegan who practices meditation.
Colon cancer in all but 5 to 10 percent of cases (in which
genes can predispose a person to getting the disease) is caused by lifestyle
and diet, making it the most preventable of all cancers, said Dr. Heinz-Josef
Lenz, scientific director of the Cancer Genetics Unit at the University of
Southern California's Norris Cancer Center.
Younger colon cancer sufferers like Borges are more likely
to survive longer because they have a stronger will to live, said Lenz, who is
also Borges' doctor and the co-director of USC's Colorectal Center.
"People have a lot to fight for," Lenz said.
"They're willing to be much more aggressive."
In 2011 Borges underwent an 11-hour, 17-procedure treatment
nicknamed by patients as "The Mother of All Surgeries." She lost her
ovaries, gall bladder, spleen, appendix and more. She has now gone through 45
rounds of chemotherapy.
It's a medical intervention that few colon cancer patients
attempt, Lenz said. It was successful and, for now, her cancer has abated, he
said. Meanwhile, a fire has lit inside her to try to do something that is even
used as a cliché for something impossible: cure cancer.
The Wunder Project seeks to raise $250 million to cure
cancer in nine years.
Borges came up with the figure and timeframe through closely
working with Lenz, a top researcher in the colon-cancer field who happened to
be located in the same city.
"He told me, 'I'm not here to hold hands with patients
and talk them through as they die. I'm here to cure,'" she said. "I
knew he had those intangibles I wanted in a teammate."
Then came her question: "I said, 'If you had all the
money in the world, could you cure [colon cancer]?' Without hesitation he said,
'Yes.'"
Lenz said he thinks his methodology for a cure can be used
as a blueprint to help cure other cancers, too.
"We believe this is the first domino that will lead to
the end of cancer," Borges said.
The pair -- both aggressive workers, independent thinkers
with a sense of humor -- became best friends. They email each other often a
dozen times during the day. They trade developments on colon cancer and Borges
goads Lenz to go vegan, she said.
They spend weekends together, colluding to end colon cancer.
It's an unusual relationship that has invigorated several
major colon cancer researchers around the world to quicken the pace of
research, Lenz said.
"This is absolutely novel," said Lenz, a Germany
native who has researched colon cancer for two decades. "I cannot
[fundraise like this] with my development office. They wouldn't have the drive
or perspective of a patient. This is the first time a [patient] is fully in the
middle of development."
Lenz said he doesn't see any ethics issues in treating
Borges and collaborating with her at the same time.
"At the beginning, I thought this will be weird, but it
hasn't been at all," he said. "The only worry I have is that it's too
much for her … if this jeopardizes her health, I will say, 'You cannot
continue,'" he said.
"I'm always holding my breath, 'How long this will
work'?" he said of Borges' treatment.
Borges' youth and personality are part of her drive, he
said.
"I was always an out-of-box thinker, I was always
pushing the envelope, I don't accept a no," Lenz said. "She has a
similar personality. I think we've found each other on that level. We're
fighting passionately on something we believe in. I think we found each other
in some mysterious ways."
The patient-doctor fundraising project is unusual in other
ways. Colon-cancer research is underfunded compared with breast, prostate and
other cancers even though it's the third-most common cancer when men and women
are combined, Greenamyer of the Colon Cancer Alliance said.
"The disparity in funding is huge," she said.
"There's still the squirm factor."
Borges said she has set a casual tone with colleagues,
friends and others when it comes time to talk shop about colon cancer.
"You'd be surprised how willing people are to talk
about their poop," she said. "I have to hear about people's GI
[gastrointestinal] function all the time. A colleague will take me aside and I
think they want to talk about a case but they want to talk about their
poop."
Borges and Lenz were initially prompted into action after
the MD Anderson Cancer Center in Houston announced its "Moon Shots
Program," a plan that started last month to raise $3 billion to cure six
cancers: breast, ovarian, leukemia (3 kinds), melanoma, lung and prostate.
The list didn't include colon cancer.
So far The Wunder Project has raised more than $150,000,
enough to pay for Borges' annual overhead, she said.
Borges, who appeared on "The Today Show" last week
to talk about colon-cancer awareness and her new project, said she has never
been more content.
"I think I'm having more fun now. My perspective on
life is so different, the way I truly enjoy life, and my relationships,"
she said. "I just went cage-diving with sharks."
Among the young people with colon cancer who she has helped
are four random acquaintances from college and prior years who noticed her
blog. They told her about strange gastrointestinal issues they were having and
she helped them demand colonoscopies. All four were diagnosed with colon
cancer.
They told her she saved their lives, Borges said.
If she could go back in time and not get colon cancer, but
also not experience everything she has in the past three years, she wouldn't.
"I'd take the disease every single time," Borges
said.
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