It was a small step but a huge feat for 4-year-old Gavin
Stevens, who is blind.
As seen in a YouTube video,
Gavin, of Eastvale, Calif., conquers the curb, using a cane and stepping off
the sidewalk all by himself for his first time.
Gavin broke ritual that day: Normally after preschool, his
mother holds his hand and guides him down the curb.
“No, I’ll do it,” he suddenly told his mom.
Mom Jennifer Stevens, 37, pulled out her phone to capture
the anticipated moment on video. Since Gavin can’t see pictures, his mom keeps
his memories in videos, which he can hear.
“You can do it, baby. Go ahead,” encourages his mom.
Inching his way to the curb, tapping his cane, Gavin steps
down onto the pavement.
“Good job!” his mom cheers.
When asked if he was scared to take his step, Gavin, a
normally chatty boy, told TODAY Moms, “Yeah.”
Months of hard work with a mobility therapist preceded
Gavin’s milestone. He attends a special-needs preschool as well as the Blind
Children’s Learning Center in Santa Ana, Calif., once a week, but will go to a
regular kindergarten.
“He’s so determined,” Stevens said. “He doesn’t know he’s
blind. I don’t think he understands he is different. We treat him like we do
our oldest son. We just try to make sure he’s safe.”
Worrying about kids’ safety comes with the territory of
being a parent — but that’s amplified with a child who literally can’t watch
out for danger.
The issue of Gavin’s safety began even before he was born. A
miscarriage scare forced Stevens on bed rest for much of her pregnancy. At
birth, Gavin seemed happy and healthy, and he somehow passed all his pediatric
eye exams, but Stevens’ intuition told her otherwise. An eye specialist later
confirmed that Gavin was blind.
“That was the most devastating day of our life,” Stevens
recalled.
In fact, Gavin was born blind. He has Leber's congenital
amaurosis, a rare genetic disease (1 in 50,000) of the retina, the part of the
back of the eye allowing us to see, retina specialists at Children’s Hospital
Los Angeles determined.
“When we got the diagnosis, we started to heal,” Stevens said.
Healing involved starting the Gavin R. Stevens Foundation to
learn more about LCA and seek a therapy for Gavin and kids like him. His
mutation was unknown until geneticists in Oregon decoded it and discovered a
new gene (the NMNAT 1 gene) linked to LCA.
Gavin grew up hitting milestones on his own terms. Always
timid, he never crawled and walked late. For months, he wanted nothing to do
with his little cane. Stevens, surprised the video went viral, had hoped the
video would help families in similar situations.
“I thought it would be inspiring to other parents of
children just starting to use a cane,” she said.
Gavin is starting to show special talents in things he can
hear. Music brought him to life as a baby, and he now sings, plays various
instruments and takes lessons at the Academy of Music for the Blind in
Monrovia, Calif. Gavin remembers things he hears, names and song lyrics,
especially well. (His favorite artist? “I like Pitbull,” he said.)
In addition to taking his step off the curb, Gavin experienced
many other firsts this past year: He rode his first tricycle, played in his
first soccer match, and recognized his first Braille letter, “G.”
His mom says that, at home, Gavin often insists, “No, I’ll
do it.”
“Just in the last year, he came into his own personality,”
said Stevens.
“I think he’s becoming more self-reliant. For me to capture
that point in time in his life, it was a huge step not just for stepping
independently but relevant to Gavin.”
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