On Sept. 25, 2006, Steve
Gleason blocked probably the most meaningful punt in NFL history.
His New Orleans Saints were playing their first home game back in a city that
had been devastated by Hurricane Katrina 13 months earlier. The block helped
propel the Saints to a poignant 23-3 victory over the Atlanta Falcons. A statue
titled "Rebirth" now stands outside the Louisiana Superdome
commemorating Gleason's big play.
Gleason was a 5-foot-11, rock solid 212-pound defensive back at
the time, a world class athlete playing a gladiator's sport. Today he's 35,
confined to a motorized wheelchair. That's
thanks to an ongoing battle with the nerve disease amyotrophic lateral
sclerosis — better known as ALS or
Lou Gehrig's disease — that began two years ago.
But, reminiscent of how he helped inspire a community weakened
by natural disaster in 2006, Gleason today gives hope and support to a
worldwide community weakened by an incurable disease. And what he does would be
impossible if not for powerful technology and
the digital connectivity of social media.
A product from the company Tobii lets Gleason use his eyes to control a
monitor attached to his chair. He's then able to write messages — including
tweets and an email interview for this article — and browse the web despite not
having enough muscle function to do so manually. He's also able to move around,
speak, open doors and control household appliances thanks to high-tech tools.
But he's not the only one benefitting. His
foundation recently
constructed the Team Gleason House for Innovative Living, a $25 million, 18-bed
skilled nursing facility in New Orleans that he writes is just the second of
its kind worldwide and "will allow ALS patients the same technology and
level of independence I have."
Gleason also posts personal tweets, signed "SG," to
the @Team_Gleason Twitter account (staff members post
non-signed messages) and says social media has helped give ALS patients like
himself power they never had before.
"Because of the Internet and social media ALS patients are
able to share their experiences and knowledge with each other," he writes.
"That has played a massive role in the ALS community. We are able to
communicate efficiently on topics of treatment, equipment, technology and other
resources. Prior to this, ALS patients were isolated and had to rely on their
doctors or medical community for advice."
Raising money and awareness, building the high-tech house —
Gleason says all that is just the beginning of what he hopes to help people
accomplish.
"If we continue to fuel the conversation about ALS and put
the brightest people together with the people with the right resources, it can
be the most significant impact on ALS in 100 years," he writes. "Many
people and groups are working toward the same goal and collectively, we can all
affect the needed change."
Thumbnail image via Cindy Ord/Getty Images
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